Brannon had a neurological appoinment last week. We had taken him off his seizure medication in February...a good thing. We took him to his EEG appointment today.
Appointment in Minneapolis...about 45 minutes away. Started out a little late. Picked up Kelly from work. I got a ticket for speeding. I am premenstrual and started to cry after highway patol gave me my ticket. They wear stoopid hats.
Kelly took Brannon in to appointment. I sat in car until Kelly came out to check on me and asked me to come in.
Good thing I came in. Good thing Kelly was there with me.
Brannon had all the little things attached to his head. The strobe light section was cool. He did great. Then he had to blow a pinwheel for about 1 minute. He did great. He was not hyperventillating. He was just sitting there...like he was supposed to.
Then he had a seizure.
It is awful watching your child go through that. He had spitty foam coming out of his mouth on one side and a little bit of blood on the other. He must have bit down on one of his front teeth that is was bleeding a bit and is loose.
But they got in on the computer and on video. He is on a new medication.
At least he had the seizure at the office, hooked up to all those machines. At least he wasn't at schools or someplace where he might have been embarrassed and freaked people out...besides him mom and dad.
He is too big to snuggle on my lap, but that is what I wanted to do.
He can't remember much of what happened before the seizure.
Earlier today in one of his classes he got bored and made blue marker dot patterns all of his left hand. After the seizure, he looked at it and got a really confused look and said, "What the heck?" He did not know where he was for a while. He didn't know the month. But later he could answer questions like: who is the president? where do you live?
I am very emotionally drained and still want to cry. I cried during his seizure. Kelly was very strong.
9 comments:
I'm so sorry Lisa, it is really hard feeling helpless when it comes to the health and safety of our children. I am so glad I don't remember much of the seizures I had and I am glad they eventually stopped. Our prayers are with you and your family.
You should put him in your lap and hold him if that's what you want to do. Or at least let him lay with his head in your lap. I will cry with you. It is so hard to see kids go through their health issues. I hope this medication works well for him, and I am glad it was all documented so the doctors have "proof" of what's going on. My thoughts and prayers are with you sweetie. Give Bran a squeeze for me.
Lisa:
That is the scariest feeling to see your child "short-circuiting" like that. I hope he is okay. You are in about the best place on the planet for medical help. Have they diagnosed him? What is the problem - I'm curious, I have a cousin whose son is experiencing something similar with seizures (he's younger 4 y.o.) - his happen a lot while he is sleeping, but also during the day. It has been very stressful for them. Health stuff regarding your kids is tough. Hang in there and know we will help and support you how ever you need it!
Oh Lisa, I'm so sorry. What a hard thing to go through.
♥♥♥
Reading that made me sick to my stomach, and cry a little too... Everything we have been through... none of it compares to seizures. Hate them... they stink...
And I relate to not being able to snuggle him! :( that stinks too...
LOVE YOU!!!
I;m glad that if this had to happen that it was at the Dr's office and that Kelly was with you.
Tell Brannon that we are thinking of him and will say our prayers for him and for your family. I'm sorry you had to go through this. Sometimes it's hard being a mom. Maybe he doesn't need a hug but tell him that you do.
I didn't think it was the tuna.....
But at least there were things to laugh about - "Jokes can be noble. Laughs are exactly as honorable as tears. Laughter and tears are both responses to frustration and exhaustion. I myself prefer to laugh, since there is less cleaning up to do afterward." - Kurt Vonnegut
Wow, I'm so sorry...and highway patrol do wear stupid hats! ;.)
What did the pinwheel do to cause the seizure? Is that the same as strobe lights that you hear cause seizures?
That is so scary! Brannon I'm glad your ok.
~Meghan
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